Australia needs MND data registry for better support

Advocates are urging the Australian government to establish a national data registry for motor neurone disease (MND) to better understand and support those affected. This initiative requires $12 million. MND, a fatal neurological disease, causes muscle deterioration, leading to loss of speech, swallowing, and breathing abilities. Currently, there is no cure, and limited treatment options exist for the estimated 2,700 Australians living with the condition. The disease claims two lives daily in Australia, with two new diagnoses. The proposed registry aims to improve understanding of the disease's causes and provide targeted support, as current data is insufficient.