Parents advocate for newborn genetic screening after son's death from spinal muscular atrophy

Parents are urging participation in a new genetic screening program after their son died from a rare condition. The Generation Study tests newborns for over 200 genetic disorders, a test not available when their son Aarav was born. Early detection is crucial for treatment of conditions like spinal muscular atrophy. Aarav was diagnosed with SMA at six months old and died shortly after his first birthday. The screening is now available at several NHS trusts, aiming to prevent similar tragedies.